Capturing the Phenomenological Perspectives of Psychological Flexibility among Parents of Children with ASD

Authors

  • Maria Mazhar PhD Scholar, Department of Psychology, University of Gujrat, Gujrat, Punjab, Pakistan.
  • Dr. Noreena Kausar Assistant Professor, Department of Psychology, University of Gujrat, Gujrat, Punjab, Pakistan.

DOI:

https://doi.org/10.55737/qjss.970310515

Keywords:

Autism Spectrum Disorder, Pakistan, Parental Psychological Flexibility, Qualitative Study, Punjab

Abstract

Parenting a child with ASD causes a lot of challenges in the parent’s life that have a significant effect on the psychological health and well-being of the parents. Despite extensive research on parenting ASD children in Pakistan, there is a significant gap in understanding psychological flexibility among parents, especially in the Pakistani context. The purpose of the current study is to explore the phenomena of psychological flexibility among parents of children with ASD. Qualitative research design was used in the current study. A purposive sampling technique was used to select the sample of 20 participants from different cities of Punjab, Pakistan. Data were collected through semi-structured interviews. After data collection, the verbatims were transcribed, and data were analyzed using Barun and Clarke's (2006) thematic analysis procedure. As a result of thematic analysis, five main themes of Mindfulness, Acceptance, Adaptation, Executive functioning and Resilience were identified under the concept of psychological flexibility. The study highlights the importance of psychological flexibility in helping Pakistani families raise children with ASD. Institutional and government-level therapies and seminars should be organized to enhance parental psychological flexibility, enabling them to better adapt to changes in behaviours and routines relating to the needs of ASD children.

Downloads

Download data is not yet available.

Author Biography

  • Maria Mazhar, PhD Scholar, Department of Psychology, University of Gujrat, Gujrat, Punjab, Pakistan.

References

American Psychiatric Association, D. S. M. T. F., & American Psychiatric Association, D. S. (2013). Diagnostic and statistical manual of mental disorders: DSM-5 (Vol. 5, No. 5). Washington, DC: American Psychiatric Association.

Beeckman, M., Simons, L. E., Hughes, S., Loeys, T., & Goubert, L. (2019). Investigating how parental instructions and protective responses mediate the relationship between parental psychological flexibility and pain-related behaviour in adolescents with chronic pain: a daily diary study. Frontiers in Psychology, 10, 480928.http://dx.doi.org/10.3389/fpsyg.2019.02350

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative research in psychology, 3(2), 77-101.https://doi.org/10.1191/1478088706qp063oa

Burke, K., & Moore, S. (2015). Development of the parental psychological flexibility questionnaire. Child Psychiatry & Human Development, 46, 548-557.https://doi.org/10.1016/j.jcbs.2023.09.001

CDC. (2020). Data and statistics on autism spectrum disorder. Centers for Disease Control and Prevention.

Chantasiriwate, P., Tuicomepee, A., & Taepan, N. (2019). Resilience experiences of families with children with autism. Journal Of Ratchasuda Institute for Research and Development of Persons With Disabilities, 15 (2), 22-36. https://doi.org/10.4103/jehp.jehp_837_20

Cheung, R. Y., Leung, S. S., & Mak, W. W. (2019). Role of mindful parenting, affiliate stigma, and parents’ well-being in the behavioural adjustment of children with autism spectrum disorder: Testing parenting stress as a mediator. Mindfulness, 10, 2352-2362.https://doi.org/10.1007/s12671-019-01208-5

Daks, J. S., Peltz, J. S., & Rogge, R. D. (2020). Psychological flexibility and inflexibility as sources of resiliency and risk during a pandemic: Modeling the cascade of COVID-19 stress on family systems with a contextual behavioural science lens. Journal of Contextual Behavioral Science, 18, 16-27. https://doi.org/10.1016/j.jcbs.2020.08.003

Diamond, A. (2020). Executive functions. In Handbook of clinical neurology (Vol. 173, pp. 225-240). Elsevier.

Dieleman, L. M., Moyson, T., De Pauw, S. S., Prinzie, P., & Soenens, B. (2018). Parents' need-related experiences and behaviours when raising a child with autism spectrum disorder. Journal of Pediatric Nursing, 42, e26-e37. https://doi.org/10.1016/j.pedn.2018.06.005

Goh, J. X., Aishworiya, R., Ho, R. C. M., Wang, W., & He, H. G. (2021). A qualitative study exploring experiences and support needs of parents of children with autism spectrum disorder in Singapore. Journal of Clinical Nursing, 30(21-22), 3268-3280. https://doi.org/10.1111/jocn.15836

Gur, A., & Reich, A. (2023). Psychological flexibility of parents of children with disabilities: A systematic literature review. Research in Developmental Disabilities, 136, 104490. https://doi.org/10.1016/j.ridd.2023.104490

Hennink, M., Hutter, I., & Bailey, A. (2020). Qualitative research methods. Sage.

Higgins, L., Mannion, A., Chen, J. L., & Leader, G. (2023). Adaptation of parents raising a child with ASD: The role of positive perceptions, coping, self-efficacy, and social support. Journal of Autism and Developmental Disorders, 53(3), 1224-1242. https://psycnet.apa.org/doi/10.1007/s10803-022-05537-8

Kashdan, T. B., & Rottenberg, J. (2010). Psychological flexibility as a fundamental aspect of health. Clinical psychology review, 30(7), 865-878. https://psycnet.apa.org/doi/10.1016/j.cpr.2010.03.001

Kausar, N., Akram, B., Dawood, S., & Ahmad, F. (2019). Development of an indigenous parental perceived stress scale for children with autism spectrum disorder. Pakistan Journal of Psychological Research, 34(2), 433-456. https://doi.org/10.33824/PJPR.2019.34.2.24

Kausar, N., Akram, B., Dawood, S., & Ahmad, F. (2019). Socio-demographic Variables and Parental Stress of Children with Autism Spectrum Disorder. Pakistan journal of Social Issues, 10(2019). 196-206. https://uog.edu.pk/downloads/journal/X/13.pdf

Khalid, M., Raza, H., M. Driessen, T., J. Lee, P., Tejwani, L., Sami, A., ... & Kaukab Raja, G. (2020). Genetic risk of autism spectrum disorder in a Pakistani population. Genes, 11(10), 1206. https://doi.org/10.3390/genes11101206

Marshall, E. J., & Brockman, R. N. (2016). The relationships between psychological flexibility, self-compassion, and emotional well-being. Journal of Cognitive Psychotherapy, 30(1). https://doi.org/10.1891/0889-8391.30.1.60

Schlebusch, L., & Dada, S. (2018). Positive and negative cognitive appraisal of the impact of children with autism spectrum disorder on the family. Research in Autism Spectrum Disorders, 51, 86-93. https://doi.org/10.1016/j.rasd.2018.04.005

Shorey, S., & Ng, E. D. (2021). The efficacy of mindful parenting interventions: A systematic review and meta-analysis. International Journal of Nursing Studies, 121, 103996. https://doi.org/10.1016/j.ijnurstu.2021.103996

Tran, T. (2021). The mental health experience among parents of children with autism. San Jose State University Library. https://doi.org/10.31979/etd.gn6e-q578

Published

2024-09-04

Issue

Section

Articles

How to Cite

Mazhar, M., & Kausar, N. (2024). Capturing the Phenomenological Perspectives of Psychological Flexibility among Parents of Children with ASD. Qlantic Journal of Social Sciences, 5(3), 90-98. https://doi.org/10.55737/qjss.970310515

Similar Articles

1-10 of 201

You may also start an advanced similarity search for this article.